Providing a moment of respite
Fondation Syndrome de West
Location: Madrid, Spain
The Foundation promotes scientific research work and international medical conferences to develop research on the rare disease, West Syndrome. The Foundation also supports families impacted by the disease through therapy programmes, “respite” camps, educational and emergency accommodation centres, and occupational training for people with disabilities.
It is seeking to acquire a vehicle supplementing the one financed by the PSA Foundation in 2011. The vehicle will be used to take children suffering from West Syndrome on weekend outings.
THE ROLE OF THE SPONSOR
Jésus Tapiador Rodriguez – Madrid, Spain
Jésus is personally concerned by this cause, as his daughter suffers from West Syndrome. He is actively committed to the structure, notably taking part in fund-raising initiatives to finance its activities.share this project
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